• Mashup Score: 7
    Juvenile Arthritis Research - Family support - 3 year(s) ago

    Being told that your child has a long-term health condition can be daunting, and can leave you feeling isolated and alone. Children can feel frightened, and unsure of what is happening. They may not understand why they are experiencing symptoms that their peers don’t have. They may be worried

    Source: www.jarproject.org
    Categories: Latest Headlines, Rheumatology
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      SimonRStones

      An unintentional omission from my third slide is @JARProject, who are doing amazing work for our #JIA community, including lots of fabulous resources to access via their website, such as ‘A little box of Hope’. Take a look for yourself! #PReS2021 https://t.co/fr2mzVuGCg https://t.co/1aySRNTEg8

  • Mashup Score: 4
    Pain Forecast: How to Predict Chronic Pain - Centre for Epidemiology - 3 year(s) ago

    In 2016, researchers at the Centre for Epidemiology Versus Arthritis conducted a national smartphone study, called Cloudy with a Chance of Pain, to investigate the age old belief that weather influences pain. We asked people to track their symptoms using a smartphone app and then used the GPS within the phone to pull their local weather data. More information about the Cloudy with a Chance of…

    Source: Centre for Epidemiology
    Categories: Latest Headlines, Rheumatology
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      SimonRStones

      If you live with #chronicpain, consider taking part in this research which aims to build a pain forecast to help predict changes in pain severity. Click the link for more information: https://t.co/P9DwlElAum @Pain_UK @UoNPainCentre @fmauk @YourRheum @ArthursPlaceUK @LUPUSUK https://t.co/4ZgYoMvSD7

  • Mashup Score: 0
    Patients in Publications - WECAN - 3 year(s) ago

    Learn how to plan and publish peer-reviewed research. Ensure patient involvement in external and advocacy-led initiatives.

    Source: WECAN
    Categories: Latest Headlines, Rheumatology
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      SimonRStones

      A fabulous training course from my colleagues at @EnvisionPharma @EnvisionPatient together with @WECANadvocate to support #PatientsAsAuthors. Check it out! https://t.co/WvqbnkB2qq @EUPATI_UK @enca2002 @EULARYoungPARE @NIHRtakepart @wegohealth @savvy_coop @eupatientsforum https://t.co/0VMFPIIPFQ

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