The SUDEP Communication Gap
Judith Luker discusses the sudden unexpected death in epilepsy communication gap and the importance of physician-patient conversations.
Judith Luker discusses the sudden unexpected death in epilepsy communication gap and the importance of physician-patient conversations.
We have noticed an unusual activity from your IP 199.16.157.180 and blocked access to this
Welcome to The Canadian MPS Registry website! This website has information about the patient registry and how to join.
Welcome to The Canadian PKU Registry website! This website has in formation on the patient registry and how to join. At this time, to be…
Among some population groups, it’s not unusual to down a four or more vitamins or supplements every day, new research shows.
QUINCY, MA, May 1, 2024—The National Organization for Rare Disorders (NORD) announced today that Pamela K. Gavin has been named CEO effective immediately. She
Treatment with NALL for 12 weeks yields better neurological status than placebo among patients with Niemann-Pick disease type C.
Cat Lutz, PhD, MBA, VP at JAX Rare Disease Translational Center, discusses rare disease research’s impact on understanding common diseases.
Philips has reached a $1 billion settlement in the U.S. related its Respironics ventilators, and backed its full-year guidance.
Bill Grambley explains how his company attacks health inequalities by providing personalized pharmaceutical care with an AI based platform.
We have noticed an unusual activity from your IP 192.133.77.15 and blocked access to this