The ever looming shadow of caregiving
David Kang shares what it is like to live with someone with profound autism and the impact this can have on the whole family Our household doesn’t rely on alarm clocks. Instead, it’s the consistent thumping of my 18 year old brother’s foot against the side of his crib that signals 6 am. His profound autism and developmental delay are woven into the fabric of our family’s daily routine, and his silent cues shape our interactions. Breakfast, a simple meal for many, is an intricate dialogue for us. My brother doesn’t communicate with words, but his actions speak volumes. A fleeting smile and hand rub mean yes, while a whine or deliberate head turn signals no. My life is completely mapped out by my caregiving role. Home based care requires understanding of the unique environment my brother needs to feel secure and happy. …