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    • A Heart-Failure Drug Tames Palpitations in Long Covid Patients https://t.co/G7nDZ9RpNb Can help postural orthostatic tachycardia syndrome, #POTS Corlanor (generic ivabradine) + specific exercises. Within 1-2 months, pts feel better and can be titrated off the drug. #spoonie https://t.co/EwRPNOAL0c

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    Personal stories about spondylitis that will inspire and connect you to the community. Hosted by the Spondylitis Association of America.

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    • These are YOUR stories! Save the Date, 6/3/22, to hear FIVE storytellers sharing their own personal journeys living with #ankylosingspondylitis and related diseases - or caring for someone living with the disease. Save your seat: https://t.co/oUNGfK5gh9 #spondylitis #spoonie https://t.co/2iXS1rrmK8

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    Personal stories about spondylitis that will inspire and connect you to the community. Hosted by the Spondylitis Association of America.

    Tweet Tweets with this article
    • You’ll want to HEAR these powerful stories! SAVE the Date: June 3rd, 2022, to hear FIVEstorytellers sharing their own personal journeys living with #spondylitis and related diseases or caring for someone living with the disease. Grab a seat now: https://t.co/oUNGfK5gh9 #spoonie https://t.co/KSfx1x2NaF

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    We invite you to join our network of volunteers who are raising awareness about pain, fighting for improvements in federal and state pain-related policy, and providing direct support to their peers! Signing up as a volunteer means you will receive action alerts, be notified about special…

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    • We invite you to join our network of volunteers who are raising awareness about pain, fighting for improvements, and providing direct support. If you would like more information and how to get involved, click the link:https://t.co/ZtTyBy5c2f #spoonie #chronicillness https://t.co/VtYZjXlyqA

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    Personal stories about spondylitis that will inspire and connect you to the community. Hosted by the Spondylitis Association of America.

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    • In case you missed it... “It is AMAZING to hear your story. This is my daily life!” “Y'all are not alone in this journey! These are just a few of the comments from our first “SAA Storytellers" show. Catch the replay here: https://t.co/6Q3TmGFEgK #spoonie #ankylosingspondylitis https://t.co/PCykjkhQUl

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    2022 Chronic Pain: community survey.

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    • Unless you live with pain, it is hard to understand what it is like. We want to hear about your concerns and experiences managing pain. Your feedback is important and will help us advocate. Will you take our survey? CLICK HERE: https://t.co/RoWr4Pt1m1 #spoonie #invisibleillness https://t.co/q2SW4OZvkc

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    INvisible Project - 2 year(s) ago

    Real People, Real Stories, Real Hope

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    • "I don’t know anyone at all who is BIPOC with my condition. I know we are out there. If we were accurately represented in the community, health disparities and medical bias would lessen.” To read more about Syanne, click here: https://t.co/YaVqvJD9fp #chronicpain #spoonie https://t.co/iLCRvEcRyW

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    Tell A Story with SAA Storytellers, Your Stories on Stage! Send Us Your Story Pitch! Thank you for your interest in being a part of SAA Storytellers, Your Stories on Stage! SAA is always looking for those in the spondyloarthritis community to tell their story (patients, caregivers, medical personnel, and friends of the community – …

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    • What's YOUR story? “SAA Storytellers, Your Stories on Stage” is a virtual community storytelling show where YOU tell your challenging, inspiring… stories about how #spondylitis has affected your life. All R welcome! Can’t wait to HEAR from YOU! https://t.co/MtSC7M0SY7 #spoonie https://t.co/4ViFHTWjhy