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    The Sickle Cell Disease Coalition was formed to amplify the voice of the sickle cell disease stakeholder community to improve outcomes for individuals with SCD.

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    • In addition to its work at the domestic level, @ConquerSCD offers a series of accessible educational resources to spread awareness and disseminate high-quality information about #sicklecell to key stakeholders across the globe šŸŒ Learn more: https://t.co/Fz7JT8sf9z 2/2

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    Subscribe or Unsubscribe to the SICKLECELLLUNCHANDLEARN List SICKLECELLLUNCHANDLEARN@LISTSERV.BROWN.EDU This screen allows you to subscribe or unsubscribe to the SICKLECELLLUNCHANDLEARN list. To confirm your identity and prevent third parties from subscribing you to a list against your will, an email message with a confirmation code will be sent to the address you specify. Simply…

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    • Excited to resume our #SickleCell Lunch and Learn series next week, rebranded as the New England Sickle Cell Consortium Lunch and Learn Learn how to advocate & use social media from @theHemeNP Iā€™ve even figured out how to create a listserv. Join below https://t.co/A90GA08Q4P https://t.co/u51JCp20C4

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    Violin prodigy, sickle cell disease survivor Ā  His story: On August 1 Caesar Sant celebrated his 14th birthday, surrounded by his mom, dad, two sisters,

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    • Feeling inspired by the story of this #warrior today: https://t.co/gS5zIqQaRd #SickleCellAwarenessMonth #sicklecell

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    The only way to review your schedule, access your test results, and place orders! You are not required to create an account and may schedule an appointment as a guest. If you’d like an account, you’ll have an opportunity to register during scheduling.

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    • Attention Rhode Islanders, still have some slots for our #SickleCell Blood Drive tomorrow at the Lifespan Community Health Institute. If you can, sign up and donate or share with those who may be able! #SickleCellAwarenessMonth https://t.co/b8v9k3Vydf https://t.co/dRIPWHL7Pw

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    Khylia Marshall is a freelance journalist based in Tucson, Arizona. Sudden death is a common yet unexplained cause of mortality in adults liv ing with sickle cell anemia (SCA), accounting for about 20% of their deaths. Ventricular arrhythmias (VAs) are frequent in people with SCA, and left ventricular (LV) global longitudinal strain (GLS), an echocardiography parameter used to assess LV function, may be used to enhance the stratification of rhythmic risk in people with SCA, according to a study published

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    • For patients with #sicklecell #anemia, who frequently experience #ventricular #arrhythmias, left ventricular GLS appears to enhance the stratification of rhythmic risk in this population, based on recent research https://t.co/VHbRlTZ7Gx

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    Pain Reports published a study that investigated potential variations in acute pain trajectories based on sex and frequency of pain episodes among adolescents diagnosed with sickle cell disease (SCD) who sought care at the emergency department (ED). ā€œPain is the most common complication of sickle cell disease and is associated with significant morbidity, poor health-related quality of life, and premature mortality,ā€ the authors wrote. However, ā€œthe period around adolescence is associated with sex differenc

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    • A study investigated potential variations in pain trajectories based on sex and other factors in adolescents with sickle cell disease. #SCD #sicklecell #anemia #hematology https://t.co/jEZSoXrHsj https://t.co/lBE3MaO4CK