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    Latinos & Rare Diseases - National Organization for Rare Disorders - 11 month(s) ago

    Leer en español  |  Download promotional flyer The National Organization for Rare Disorders (NORD) is hosting in-person and virtual listening sessions for Latino/a/x people affected by rare diseases in the United States. NORD has been a leader in rare disease patient advocacy for 40 years; we believe that every person living with a rare disease has a right to their best health and well-being….

    Source: National Organization for Rare Disorders
    Categories: Latest Headlines, Rare Disease
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      RareDiseases

      Are you #Latino/#Latina/#Latinx and want to share your experience as a #RareDisease patient, caregiver, or family member? Join our national (virtual) community listening session next Thursday, June 1! Sign up here: https://t.co/k47pxmt93F #EnfermedadesRaras

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    Latinos & Rare Diseases - National Organization for Rare Disorders - 12 month(s) ago

    Leer en español  |  Download promotional flyer The National Organization for Rare Disorders (NORD) is hosting in-person and virtual listening sessions for Latino/a/x people affected by rare diseases in the United States. NORD has been a leader in rare disease patient advocacy for 40 years; we believe that every person living with a rare disease has a right to their best health and well-being….

    Source: National Organization for Rare Disorders
    Categories: Latest Headlines, Rare Disease
    Tweet Tweets with this article
    • Profile photo of RareDiseases
      RareDiseases

      Are you #Latino/#Latina/#Latinx and living in or around #Houston, Texas? We want to hear your #RareDisease experience as a patient, caregiver or family member. Join our private community listening session TOMORROW, 5/17. Sign up here: https://t.co/i8vI1itAsl #EnfermedadesRaras https://t.co/7rUHhBRUpq