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    Lauren Ghazal wasn’t sure how to react when, in 2018 — just a few months after starting her nursing theory Ph.D. program at New York University — her

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    • 🤩Proud to call Dr @lghazal a collaborator and friend. Her voice/perspective as a nurse, researcher, and survivor is unparalleled. Excited to have her on the program for #ASCOQLTY23 and to continue our work to improve survivorship care for #AYACSM #survonc https://t.co/ttytKHgkia https://t.co/ikR81551Xt

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    “Concerns like the health of future children are at the top of mind for many young adult [patients] diagnosed with cancer, but they are already so overwhelmed at the time of diagnosis with navigating cancer-related information,” stressed lead study author Caitlin C. Murphy, PhD, MPH, Associate Professor of Health Promotion and Behavioral Sciences at the UTHealth Houston School of Public Health. “Our findings can be used in clinical practice to provide counseling and inform this population of the potential

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    • Are Children of Female Patients With a Cancer History at Risk of Birth Defects? https://t.co/3zsgxjBoz8 #ayacsm #cancer #survivorship #birthdefects

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    Twitter use has increased among patients with cancer, advocates, and oncology professionals. Hashtags, a form of metadata, can be used to share content, organize health information, and create virtual communities of interest. Cancer-specific hashtags modeled on a breast cancer community, #bcsm, led to the development of a structured set of hashtags called the cancer tag ontology. In this article, we review how these hashtags have worked with the aim of describing our experience from 2011 to 2017. We discuss useful guidelines for the development and maintenance of health-oriented communities on Twitter, including possible challenges to community sustainability and opportunities for future improvement and research.

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    • Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities [Jun 28, 2019] @subatomicdoc et al. @JCOCCI_ASCO https://t.co/776r7qmxcY #ayacsm #bcsm #btsm #gyncsm #lcsm #mmsm #pancsm https://t.co/zRRXhTPnNH

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    PURPOSE Historically, patients with T-cell acute lymphoblastic leukemia (T-ALL) who fail to achieve remission at the end of induction (EOI) have had poor long-term survival. The goal of this study was to examine the efficacy of contemporary therapy, including allogeneic hematopoietic stem cell transplantation (HSCT) in first remission (CR1). METHODS Induction failure (IF) was defined as the persistence of at least 5% bone marrow (BM) lymphoblasts and/or extramedullary disease after 4-6 weeks of induction chemotherapy. Disease features and clinical outcomes were reported in 325 of 6,167 (5%) patients age 21 years and younger treated in 14 cooperative study groups between 2000 and 2018. RESULTS With a median follow-up period of 6.4 years (range, 0.3-17.9 years), the 10-year overall survival (OS) was 54.7% (SE = 2.9), which is significantly higher than the 27.6% (SE = 2.9) observed in the historical cohort from 1985 to 2000. There was no significant impact of sex, age, white blood cell co

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    • 🙌 Outcome improvement for T-cell #AcuteLymphoblasticLeukemia and induction failure in a contemporary treatment era ➡️ https://t.co/z30ElUTj4M #leusm #AYACSM https://t.co/pwVy1itPPD

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    Several recent studies have shown an increasingly disturbing trend: the incidence of early-onset cancers—those diagnosed in individuals younger than age 50—is on the rise, and not just in the United States but globally as well. Worldwide, in 2019, there were a reported 1.19 million new cases of cancer among adolescents and young adults (AYAs), aged 15 to 39, and approximately 425,000 deaths. 1 Although considered a rare occurrence in the United States, cancer in this age group has risen by nearly 30%

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    • How the Cancer Moonshot Aims to Improve the Quality of Life for Adolescent and Young Adult Cancer Survivors: A Conversation With Danielle Carnival, PhD https://t.co/Xk4yxdu9zO #AYAcsm #AYAs #cancer #survivorship #cancermoonshot @D_Carnival

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    JNCCN - 9 month(s) ago

    JNCCN

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    • The August issue of @JNCCN is now available online! Featured: @NCCN Guidelines on Adolescent and Young Adult (#AYA) Oncology, insights into recent updates to #NCCNGuidelines for #Survivorship, and more! https://t.co/8t8aPaSww2 #AYAcsm #survonc https://t.co/WiN2kzpsqA

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    Cancer Morbidity, Mortality, and Improvement Rounds is a series of articles intended to explore the unique safety risks experienced by oncology patients through the lens of quality improvement, systems and human factors engineering, and cognitive psychology. For purposes of clarity, each case focuses on a single theme, although, as is true for all medical incidents, there are almost always multiple, overlapping, contributing factors. The quality improvement paradigm used here, which focuses on root cause analyses and opportunities to improve care delivery systems, was previously outlined in this journal. This article describes the care of a young patient with aggressive breast cancer, declining performance status, and multiple hospital admissions who died shortly after being discharged home without essential medications or an adequate plan for follow-up. The patient’s death due to her malignancy was unavoidable, but she had inadequate resources before her death, leading to avoidable su

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    • Fantastic new @JCOOP_ASCO series w in depth case based discussions focused on quality. This case highlights the heartbreaking challenges for #AYACSM pts who are: ➡️primary breadwinners w young kids ➡️recent immigrants supporting family "back home" https://t.co/ZJLMyz6dKL https://t.co/NEnCE22BVw