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Mashup Score: 4HRQOL instruments for clinical trials in AL amyloidosis | PROM - 2 year(s) ago
Summarizing the methods, findings, and recommendations of the health-related quality of life instruments for clinical trials in AL amyloidosis. Read more
Source: www.dovepress.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 2NIH Awards $40,000 to Amyloidosis Research Consortium (ARC) - 2 year(s) ago
The NIH has awarded the Amyloidosis Research Consortium $40,000 to support the organization’s Amyloidosis Forum meeting on June 21, 2023 …
Source: Amyloidosis Research ConsortiumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
ARC is pushing research forward today, on #NationalAmyloidosisDay, and everyday. Our programs like the #AmyloidosisForum are a model for collaboration garnering support from the @NIH and Members of Congress like @JakeAuch: https://t.co/j1PhihIMvQ https://t.co/HjCyr2Kp9o
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Mashup Score: 2NIH Awards $40,000 to Amyloidosis Research Consortium (ARC) - 2 year(s) ago
The NIH has awarded the Amyloidosis Research Consortium $40,000 to support the organization’s Amyloidosis Forum meeting on June 21, 2023 …
Source: Amyloidosis Research ConsortiumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
We're glad to announce the @NIH has awarded the #AmyloidosisForum a grant to support our upcoming meeting in June. https://t.co/j1PhihIMvQ https://t.co/XAhK9lL46R
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Mashup Score: 1ATTR Patient and Caregiver Experience Survey - ARC - 2 year(s) ago
ARC is conducting an anonymous online survey to collect data and information on patients and caregivers experience with ATTR amyloidosis …
Source: Amyloidosis Research ConsortiumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
DON'T MISS YOUR CHANCE to help guide the future of #ATTR #amyloidosis research and treatments! ARC is conducting an online survey of patients and caregivers to help inform our next #AmyloidosisForum meeting. Our survey closes at 11:59pm ET May 2! https://t.co/NQcUsOlUsU
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Mashup Score: 2ATTR Patient and Caregiver Experience Survey - ARC - 2 year(s) ago
ARC is conducting an anonymous online survey to collect data and information on patients and caregivers experience with ATTR amyloidosis …
Source: Amyloidosis Research ConsortiumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Let your voice guide the future of #ATTR #amyloidosis research and treatments! ARC is conducting an online survey of patients and caregivers to help inform our next #AmyloidosisForum meeting: https://t.co/NQcUsOlUsU
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Mashup Score: 3ATTR Patient and Caregiver Experience Survey - ARC - 2 year(s) ago
ARC is conducting an anonymous online survey to collect data and information on patients and caregivers experience with ATTR amyloidosis …
Source: Amyloidosis Research ConsortiumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Calling all physicians treating #amyloidosis! ARC is conducting an anonymous online survey of patients' and caregivers' experience with #ATTR amyloidosis and its treatment to inform the next #AmyloidosisForum meeting with the FDA. Will you share the word? https://t.co/NQcUsOlUsU
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Mashup Score: 0Home - The Amyloidosis Forum - 2 year(s) ago
Formed in 2019, The Amyloidosis Forum has been developed through a public-private partnership between the Amyloidosis Research Consortium (ARC) and the US Food and Drug Administration (FDA). The overarching goal of the Forum is to optimize innovation and accelerate the advancement of new therapeutics by addressing scientific gaps and needs through the conduct of mutually beneficial scientific…
Source: The Amyloidosis ForumCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Learn more about our work with FDA, the #AmyloidosisForum, here: https://t.co/cCtzX4sdBL
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Mashup Score: 2Start Solving as an Innovator with HeroX | Sign Up - 3 year(s) ago
Create your profile, find a challenge, and start solving! Join a team or form your own, or go solo. Always free, always open.
Source: www.herox.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Here's how to VOTE TODAY: 1. Go to https://t.co/Lo0sqpU19q 2. Create a free HeroX account 3. Click the "Vote for this submission" button on the HeroX website 4. Click "Yes" 5. Enter your phone number (HeroX's verification system to make sure only one vote per person is cast)
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VOTE TODAY and help our #AmyloidosisForum submission to the HeroX #DataWorks challenge win the people's choice recognition award! Only the TOP TWO submissions win and we're currently in THIRD place. We need you! Regiester and vote here: https://t.co/Lo0sqpUyYY #amyloidosis https://t.co/nJm58uJ0jW
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Mashup Score: 6Start Solving as an Innovator with HeroX | Sign Up - 3 year(s) ago
Create your profile, find a challenge, and start solving! Join a team or form your own, or go solo. Always free, always open.
Source: www.herox.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Your vote can help the #AmyloidosisForum (an ARC partnership) win the final round of the HeroX #DataWorks Challenge sponsored by @FASEBorg and @NIH Create an account and vote here: https://t.co/Lo0sqpU19q #amyloidosis https://t.co/T52M9HffaT
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Mashup Score: 5The Amyloidosis Forum | November 18, 2022 | Afternoon Sessions - 3 year(s) ago
Recording of the Afternoon Sessions from the Amyloidosis Forum: Potential Pathways for Development of Imaging Endpoints for Clinical Trials in AL and ATTR Am…
Source: YouTubeCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Leading up to our #AmyloidosisForum meeting on November 18 we polled our patient network to hear about their experiences with imaging and #amyloidosis. Our Founder & CEO, @i_lousada presented initial impressions, which you can watch here: https://t.co/RKQ7YUg0oF
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The #AmyloidosisForum HRQOL Working Group identified existing #PRO instruments relevant across a broad spectrum of #AL #amyloidosis patients for use in clinical trials and practice to facilitate patient-focused drug development in AL amyloidosis: https://t.co/dhEC1TNx20 https://t.co/LftdQB2lfL