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Mashup Score: 0NORD Breakthrough Summit 2022 - 2 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: NORD Rare SummitCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 1NORD Breakthrough Summit 2021 - 2 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: NORD Rare SummitCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Don’t miss out on the most anticipated annual conference for the #RareDisease community, the #NORDSummit on Oct 17-18. The event provides two days of insights from #patient #advocates and leading experts in rare topics. @RareDiseases Register today: https://t.co/XGwOeyO384 https://t.co/1O8r2mAZQ2
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Mashup Score: 20
PURPOSE: Patients who have cancer have leveraged the Internet to gain a better understanding of their disease and connect across geographic boundaries with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving care pathways. Combined with increasing health literacy and social media, they have enabled some patients to…
Source: JCO Oncology PracticeCategories: Hem/Oncs, Latest HeadlinesTweet-
And what’s social media without the voice of patient #advocates? The Rise of the Expert Patient in Cancer: From Backseat Passenger to Co-navigator https://t.co/v7LjFDxJ6L @AndreaAnampaG https://t.co/gDWLdO0g5z
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Mashup Score: 0NORD Breakthrough Summit 2021 - 2 year(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: NORD Rare SummitCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Don’t miss out on the most anticipated annual conference for the #RareDisease community, the #NORDSummit on Oct 17-18. The event provides two days of insights from #patient #advocates and leading experts in rare topics. Register today: https://t.co/XGwOeyOAXC https://t.co/a1wIy2jIun
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Mashup Score: 0Homepage | Progress For Patients - 2 year(s) ago
1800 M Street NW, Suite 1050 South, Washington, DC 20036 – Phone: (202) 944-6700 Friends of Cancer Research is a 501 (C)(3) non-profit organization; Our tax ID number is 52-1983273. © Copyright 2017 Friends of Cancer Research. All rights reserved.
Source: www.progressforpatients.orgCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Through https://t.co/tAVdPnYWUm, @CancerResrch offers an online education program to help #patients, #advocates, and #caregivers acquire the tools to effectively communicate with drug researchers, developers, and regulators. https://t.co/KWlAqoivNh
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Mashup Score: 0Homepage | Progress For Patients - 2 year(s) ago
1800 M Street NW, Suite 1050 South, Washington, DC 20036 – Phone: (202) 944-6700 Friends of Cancer Research is a 501 (C)(3) non-profit organization; Our tax ID number is 52-1983273. © Copyright 2017 Friends of Cancer Research. All rights reserved.
Source: www.progressforpatients.orgCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
Through https://t.co/tAVdPnYWUm, Friends of Cancer Research offers an online education program to help #patients, #advocates, and #caregivers acquire the tools to effectively communicate with drug researchers, developers, and regulators. https://t.co/JY6TdHB0jf https://t.co/FDNEmvlCq7
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Mashup Score: 3
The National Organization for Rare Disorders (NORD) has updated its State Report Card to make it more digitally friendly and added telehealth to its categories of rare disease policy issues in a nod to its increased use during the ongoing COVID-19 pandemic. NORD’s report card project began seven…
Source: Muscular Dystrophy NewsCategories: Latest Headlines, Rare DiseaseTweet-
"It is a critical tool to help lawmakers & #advocates alike understand where their state rates on key issues within the #RareDisease community." NORD's VP of Policy, Heidi Ross, discusses NORD's #StateReportCards. Read the full article: https://t.co/RvVCNNI7qV
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Mashup Score: 14
Miami Precision Medicine 2022: Unraveling the DNA to Conquer Cancer. Online registration by Cvent
Source: web.cvent.comCategories: Latest Headlines, Oncologists1Tweet-
Would love for our colleagues, #patients, #advocates from near and far to join us in Miami on 4/2/22 for the first #MiamiPrecisionMedicineConference2022! Esteemed panel and #TAPUR PI leading expert #keynotespeaker @rschilsky https://t.co/4SsKiGuk7e https://t.co/t6higav9pZ
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Mashup Score: 2The Conquer Cancer Patient Advocate Scholarship Program - 2 year(s) ago
The Conquer Cancer Patient Advocate Scholarship Program provides scholarships for patient advocates to attend ASCO-sponsored Symposia and the ASCO Annual Meeting to learn of important advances in their areas of interest. Scholarships help cover travel, hotel, and registration expenses and are based primarily on financial need, advocacy experience, and current advocacy activities and involvement.
Source: Cancer.NetCategories: Latest Headlines, RheumatologyTweet-
Scholarship for #cancer #patientadvocates to attend @ASCO #ASCO22 - find out more below and apply before 18th March 2022! https://t.co/XOO0KmEkdG @CancerDotNet @wegohealth @savvy_coop #patients #caregivers #advocates #patientsinvolved #patientsatcongresses
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Mashup Score: 1NORDpod on Apple Podcasts - 2 year(s) ago
Health & Fitness · 2021
Source: Apple PodcastsCategories: Latest Headlines, Rare DiseaseTweet-
Want to catch up on #NORDpod in preparation for #RareDiseaseDay and the next season? Check out seasons 1, 2, and 3 to hear from #RareDisease patients, experts, and #advocates: https://t.co/fy6sXSZbUg https://t.co/VNV86z1Iwl
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Don’t miss out on the most anticipated annual conference for the #RareDisease community, the #NORDSummit on Oct 17-18. The event provides two days of insights from #patient #advocates and leading experts in rare topics. @RareDiseases Register today: https://t.co/XGwOeyO384 https://t.co/WGcPsHIA7V