Support the PFDD – SADS Foundation
On Tuesday June 11, we will be meeting with the US Food and Drug Administration about the urgent need for new and improved treatments for Long QT Syndrome and CPVT in an Externally-Led Patient Focused Drug Development meeting (EL-PFDD). This meeting costs $140,000 for us to put together. The EL-PFDD informs the FDA in real time what our SADS community needs by way of treatment – what’s working…