wearesrna.org – MashupMD

Mashup Score: 3

ABCs of NMOSD - Managing the Dread of Relapse - 5 day(s) ago

In the “ABCs of NMOSD” episode titled, “Managing the Dread of Relapse,” Landy Thomas of SRNA was joined by Heather Dawn Sowalla.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Heather Dawn Sowalla joined Landy Thomas of @wearesrna for an ABCs of #NMOSD podcast titled, "Managing the Dread of Relapse." You can listen to the episode and find the transcript here: https://t.co/nFvHFdyeCK

Mashup Score: 1

ABCs of NMOSD - Social Reintegration Following an NMOSD Diagnosis - 9 day(s) ago

Kim Jackson-Matthews joined Landy Thomas of SRNA for an “ABCs of NMOSD” podcast, “Social Reintegration Following an NMOSD Diagnosis.”

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Landy Thomas of @wearesrna was recently joined by Kim Jackson-Matthews for an “ABCs of NMOSD” podcast episode titled, “Social Reintegration Following an #NMOSD Diagnosis.” Listen to the podcast and find the transcript here: https://t.co/0VpGTx6ByY

Mashup Score: 2

ABCs of MOGAD - Meteoroid and cosMOG Clinical Trials for MOGAD Treatments - 1 month(s) ago

In the “ABCs of MOGAD” episode titled, “Meteoroid and cosMOG Clinical Trials for MOGAD Treatments,” SRNA was joined by Dr. Michael Levy.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Krissy Dilger of @wearesrna was recently joined by Dr. Michael Levy for an "ABCs of MOGAD" podcast titled, "Meteoroid and cosMOG Clinical Trials for #MOGAD Treatments." Listen to the episode here: https://t.co/fLsE85PQqo

Mashup Score: 0

ABCs of MOGAD - I have MOGAD. Now what? - 2 month(s) ago

In “I have MOGAD. Now what?”, the first episode of the “ABCs of MOGAD” series, Krissy Dilger of SRNA was joined by Dr. Michael Levy.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  The first episode of ABCs of #MOGAD, a new podcast from @wearesrna, is now available! In this episode, titled "I have MOGAD. Now what?" Dr. Michael Levy discusses diagnosis and acute treatments for MOG Antibody Disease. Listen here: https://t.co/xYmUYefRsC

Mashup Score: 2

Operant Conditioning Rehabilitation Studies - 2 month(s) ago

SRNA was joined by Dr. Aiko Thompson for an Ask the Expert: Research Edition podcast titled, “Operant Conditioning Rehabilitation Studies.”

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Krissy Dilger of @wearesrna was recently joined by Dr. Aiko Thompson for an "Ask the Expert: Research Edition" podcast episode titled, "Operant Conditioning Research Studies." Listen to the podcast here: https://t.co/h9Pd0xfW4F

Mashup Score: 2

Community Spotlight – Kim Harrison - 3 month(s) ago

In this episode of “Ask the Expert, Community Spotlight Edition,” SRNA spoke with Kim Harrison about her journey with transverse myelitis.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Kim Harrison recently joined Lydia Dubose of @wearesrna for an episode of the "Ask the Expert: Community Spotlight" podcast to talk about her journey with #TransverseMyelitis. Listen to the episode here: https://t.co/UaUQq0IwJN

Mashup Score: 6

Community Spotlight - Paula Jones - 4 month(s) ago

In this “Ask the Expert, Community Spotlight” episode, Krissy Dilger of SRNA was joined by Paula Jones, who is diagnosed with TM.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  In the “Ask the Expert, Community Spotlight” podcast, Krissy Dilger @wearesrna was joined by Paula Jones, a filmmaker with #TransverseMyelitis, who discussed her diagnostic journey and its impact on her life and career. You can listen to the episode here: https://t.co/QPZWWNMCjd

Mashup Score: 1

Community Spotlight - Ilona Williams - 8 month(s) ago

Ilona Williams joined Lydia Dubose of SRNA to discuss her journey with neuromyelitis optica spectrum disorder (NMOSD).

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Ilona Williams recently joined @wearesrna for an "Ask the Expert: Community Spotlight" podcast episode to discuss her journey with #NMOSD. Listen to the episode here: https://t.co/1oBvN0ltFf. #NeuromyelitisOpticaSpectrumDisorder

Mashup Score: 15

MOGAD Together - 8 month(s) ago

Learn more about MOG antibody disease, connect with others in the rare neuroimmune disorders community, and raise awareness for MOGAD! No matter where you are in the world, we invite you to join us.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  Learn about MOG Antibody Disease (#MOGAD), connect with others in the rare neuroimmune disorders community, and raise awareness with @wearesrna! No matter where you are in the world, we invite you to join us. Learn more and sign up: https://t.co/fZ8FnV1Iaw

Mashup Score: 5

Quality of Life Family Camp - 9 month(s) ago

An accessible, medically-safe, family camp for children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, and their family members. The camp provides a chance for children with rare neuroimmune disorders and their family members to experience the joys of camp and connect with others who experience the same symptoms and conditions.

Source: wearesrna.org

Categories: General Medicine News, Rare Disease

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  .@wearesrna SRNA's Quality of Life Family Camp will take place in San Antonio, TX, June 30-July 4! Camp is a fantastic experience for children impacted by rare neuroimmune disorders (ADEM, AFM, #MOGAD, #NMOSD, ON, and TM) and their families. Learn more: https://t.co/lB9VIlcCuD.