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Mashup Score: 4Journal of Patient-Centered Research and Reviews | Journals | Advocate Health - Midwest - 1 month(s) ago
Journal of Patient-Centered Research and Reviews (JPCRR) is an open access, peer-reviewed medical journal founded in 2014 by Wisconsin-based Aurora Health Care, now a part of Advocate Health, an integrated health system spanning six states. Published quarterly, its scope includes unique scholarly works that aim to advance health care practices, outcomes, and experiences. Authors from any institution in any country may submit English-language manuscripts for consideration. All online content published by JPCRR, including full-text PDF files, is searchable worldwide and free to access at www.aah.org/jpcrr. JPCRR articles are indexed in PubMed Central, Directory of Open Access Journals, Google Scholar and Web of Science’s Emerging Sources Citation Index. All articles receive digital object identifiers (DOIs) from Crossref to ensure they will always be found online. Bibliographic citations for all published articles are provided on the full-text cover page as well as on the descriptive abs
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet
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Mashup Score: 3Patient Perspectives on the Use of Artificial Intelligence in Health Care: A Scoping Review - 1 month(s) ago
Purpose Artificial intelligence (AI) technology is being rapidly adopted into many different branches of medicine. Although research has started to highlight the impact of AI on health care, the focus on patient perspectives of AI is scarce. This scoping review aimed to explore the literature on adult patients’ perspectives on the use of an array of AI technologies in the health care setting for design and deployment. Methods This scoping review followed Arksey and O’Malley’s framework and Preferred Reporting Items for Systematic Reviews and Meta-Analysis for Scoping Reviews (PRISMA-ScR). To evaluate patient perspectives, we conducted a comprehensive literature search using eight interdisciplinary electronic databases, including grey literature. Articles published from 2015 to 2022 that focused on patient views regarding AI technology in health care were included. Thematic analysis was performed on the extracted articles. Results Of the 10,571 imported studies, 37 articles were include
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
Patient Perspectives on the Use of Artificial Intelligence in Health Care: A Scoping Review [Apr 2, 2024] Moy et al. @JPCRR https://t.co/GdMJ4LzROD https://t.co/mGfsnWeLZq
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Mashup Score: 3Central Nervous System Prophylaxis Utilization in Patients With Newly Diagnosed Diffuse Large B-Cell Lymphoma Within a Large Community Health System - 2 month(s) ago
Purpose: The impact of central nervous system (CNS) prophylaxis in diffuse large B-cell lymphoma (DLBCL) is contentious. The CNS International Prognostic Index (IPI) calculator offers prognostic guidance in identifying those patients who may be at highest risk of disease progression or relapse to the CNS. However, it is unclear whether this tool has guided clinician decision-making in a real-world setting. Studies have suggested that CNS prophylaxis may not offer clinically significant benefit in terms of preventing CNS disease progression. Given this, we investigated the utilization of CNS prophylaxis within our own population and documentation of the CNS-IPI score. Methods: We retrospectively evaluated patients with newly diagnosed DLBCL between January 1, 2014, and December 31, 2017. Patients were assessed for receipt of CNS prophylaxis in the form of intrathecal (IT) chemotherapy and/or high-dose intravenous (IV) methotrexate. CNS-IPI scores were calculated for all patients who rec
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
Central Nervous System Prophylaxis Utilization in Patients With Newly Diagnosed Diffuse Large B-Cell Lymphoma Within a Large Community Health System [Jul 16, 2024] Williams et al. @mtmdphd @Aurora_Cancer @JPCRR https://t.co/Bpmmx1O8Ok #CNSprophylaxis #lymsm #btsm https://t.co/OH4Gv1dhad
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Mashup Score: 23A History of #BCSM and Insights for Patient-Centered Online Interaction and Engagement - 2 month(s) ago
Purpose: Participation in cancer support groups can provide a sense of community and may better prepare patients for interactions with their health care team. Online interactions may overcome some barriers to in-person support group participation. #BCSM (breast cancer social media), the first cancer support community established on Twitter, was founded in 2011 by two breast cancer survivors. The aims of this study are to describe the growth and changes in this community and to discuss future directions and lessons that may apply to other online support communities. Methods: Symplur Signals was used to obtain all #BCSM Twitter data from January 1, 2011, to January 1, 2020 (00:00:00 Coordinated Universal Time for both). Hashtag use by selected stakeholder groups, user locations, weekly tweet chat activity, and topics were determined. Results: From year 1 (2011) to year 9 (2019), tweets using the #BCSM hashtag increased by 424%. Tweets by patient advocates increased by 226%, with a peak i
Source: institutionalrepository.aah.orgCategories: General Medicine News, General HCPsTweet-
Thank you to the 1,175 people in 58 countries who downloaded our article giving an overview of the breast cancer community #bcsm cc @stales @DrAttai https://t.co/1t37KeWqaC https://t.co/Vd0QicKpiH
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Mashup Score: 7
Purpose: Ovarian cancer is the most fatal of all gynecologic cancers, with a high relapse rate regardless of stage. Women treated for ovarian cancer, therefore, likely have supportive care needs that extend well beyond the time frame of first-line therapy. Unfortunately, there is minimal data describing these needs. The purpose of this qualitative study is to understand the supportive care needs of women with ovarian care at the end of treatment. Methods: To better understand the issues faced by women with ovarian cancer, we conducted a public Twitter chat in collaboration with gynecologic cancer social media (#gyncsm). Both quantitative and qualitative analyses were performed. Results: The chat occurred over a 1-hour time frame on Twitter and resulted in more than 300 unique and original tweets from 43 participants during the chat and an additional 60 unique participants following the chat. Survivors and physicians represented 32% and 11% of participants, respectively; caregivers, adv
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
The Needs of Women Treated for Ovarian Cancer: Results From a#gyncsm Twitter Chat[4/26/18] @TLHagan @Nauthshelley @btrfly12 @mtmdphd @DrAttai @subatomicdoc @davidgrahammd @womenofteal @btrfly12 @audvin @drdonsdizon @JPCRR https://t.co/dOHPGvQHP6
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Mashup Score: 0Coordinating an Oncology Precision Medicine Clinic Within an Integrated Health System: Lessons Learned in Year One - 2 month(s) ago
Precision medicine is a term describing strategies to promote health and prevent and treat disease based on an individual’s genetic, molecular, and lifestyle characteristics. Oncology precision medicine (OPM) is a cancer treatment approach targeting cancer-specific genetic and molecular alterations. Implementation of an OPM clinical program optimally involves the support and collaboration of multiple departments, including administration, medical oncology, pathology, interventional radiology, genetics, research, and informatics. In this review, we briefly introduce the published evidence regarding OPM’s potential effect on patient outcomes and discuss what we have learned over the first year of operating an OPM program within an integrated health care system (Aurora Health Care, Milwaukee, WI) comprised of multiple hospitals and clinics. We also report our experience implementing a specific OPM software platform used to embed molecular panel data into patients’ electronic medical recor
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
Coordinating an Oncology #PrecisionMedicine Clinic w/in an Integrated Health System: Lessons Learned in Year 1 [1/28/19] @mtmdphd Godden, Wham @antonyruggeri @mullane_michael Wilson @shamsvirani Weissman, Ramczyk, Vanderwall @JimW9200 @Aurora_Cancer @JPCRR https://t.co/bxgjOfLhwk https://t.co/yd53qWlVFb
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Mashup Score: 23A History of #BCSM and Insights for Patient-Centered Online Interaction and Engagement - 2 month(s) ago
Purpose: Participation in cancer support groups can provide a sense of community and may better prepare patients for interactions with their health care team. Online interactions may overcome some barriers to in-person support group participation. #BCSM (breast cancer social media), the first cancer support community established on Twitter, was founded in 2011 by two breast cancer survivors. The aims of this study are to describe the growth and changes in this community and to discuss future directions and lessons that may apply to other online support communities. Methods: Symplur Signals was used to obtain all #BCSM Twitter data from January 1, 2011, to January 1, 2020 (00:00:00 Coordinated Universal Time for both). Hashtag use by selected stakeholder groups, user locations, weekly tweet chat activity, and topics were determined. Results: From year 1 (2011) to year 9 (2019), tweets using the #BCSM hashtag increased by 424%. Tweets by patient advocates increased by 226%, with a peak i
Source: institutionalrepository.aah.orgCategories: General Medicine News, General HCPsTweet-
Thank you to the 1,175 people in 58 countries who downloaded our article giving an overview of the breast cancer community #bcsm cc @stales @DrAttai https://t.co/1t37KeWqaC https://t.co/Vd0QicKpiH
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Mashup Score: 7
Purpose: Ovarian cancer is the most fatal of all gynecologic cancers, with a high relapse rate regardless of stage. Women treated for ovarian cancer, therefore, likely have supportive care needs that extend well beyond the time frame of first-line therapy. Unfortunately, there is minimal data describing these needs. The purpose of this qualitative study is to understand the supportive care needs of women with ovarian care at the end of treatment. Methods: To better understand the issues faced by women with ovarian cancer, we conducted a public Twitter chat in collaboration with gynecologic cancer social media (#gyncsm). Both quantitative and qualitative analyses were performed. Results: The chat occurred over a 1-hour time frame on Twitter and resulted in more than 300 unique and original tweets from 43 participants during the chat and an additional 60 unique participants following the chat. Survivors and physicians represented 32% and 11% of participants, respectively; caregivers, adv
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
The Needs of Women Treated for Ovarian Cancer: Results From a#gyncsm Twitter Chat[4/26/18] @TLHagan @Nauthshelley @btrfly12 @mtmdphd @DrAttai @subatomicdoc @davidgrahammd @womenofteal @btrfly12 @audvin @drdonsdizon @JPCRR https://t.co/dOHPGvQHP6
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Mashup Score: 0Prognostic Implications of Vitamin D in Patients With a Hematologic Malignancy at a Large Health System in Wisconsin - 2 month(s) ago
By Daniel Mundt, Marianne Klumph, Kayla Heslin, et al., Published on 05/26/21
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
Prognostic Implications of Vitamin D in Patients With a Hematologic Malignancy at a Large Health System in Wisconsin [May 26, 2021] Mundt et al. @mtmdphd @AdvocateAurora Scientific Day https://t.co/QzyaM6n0DZ #leusm #lymsm #mmsm #mpnsm https://t.co/DTfD5qdbB1
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Mashup Score: 3Real-World Third COVID-19 Vaccine Dosing and Antibody Response in Patients With Hematologic Malignancies - 3 month(s) ago
Purpose: This study sought to describe the changes in immune response to a third dose of either Pfizer’s or Moderna’s COVID-19 mRNA vaccine (3V) among patients with hematologic malignancies, as well as associated characteristics Methods: This retrospective cohort study analyzed pre-3V and post-3V data on 493 patients diagnosed with hematologic malignancies across a large Midwestern health system between August 28, 2021, and November 1, 2021. For antibody testing, S1 spike antigen of the SARS-CoV-2 virus titer was used to determine serostatus. Results: Among 493 participants, 274 (55.6%) were seropositive both pre- and post-3V (+/+) while 115 (23.3%) seroconverted to positive from prior negative following the third dose (-/+). The remaining 104 (21.1%) were seronegative both before and after 3V (-/-). No participant was seropositive pre-3V and seronegative post-3V (+/-). Results showed a statistically significant increase in the proportion of seropositivity after receiving a third COVID
Source: institutionalrepository.aah.orgCategories: General Medicine News, Hem/OncsTweet-
Real World Third COVID19 Vaccine Dosing and Antibody Response in Patients with Hematologic Malignancies [Jul 18, 2022] @mtmdphd , Hallmeyer, @vrepublic , Liao, @mullane_michael @scmedlin , Copeland, @JimW9200 @JPCRR https://t.co/CnXLOfmBVw #COVID19nCancer #COVID19Vaccine #IDonc https://t.co/3iPQh8yrcm
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RT @JPCRR: NOW PUBLISHED!! @JPCRR Vol. 11, Issue 1: https://t.co/M2XxtAuIZG. No paywalls. Completely #OpenAccess. @advocatehealth @Aurora_H…