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Mashup Score: 0How to Build Your Care Plan - I AM ALS - 2 year(s) ago
ALS and Activities of Daily Living This guide from the Les Turner ALS Foundation provides helpful information on tips for maintaining energy, sleeping, equipment for adapting activities such as eating, dressing, toileting, recreation, grooming and more.
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2Join the I AM ALS Familial ALS Social Hour! - I AM ALS - 2 year(s) ago
The experience of losing multiple family members to ALS while understanding that you might also develop the disease can be overwhelming and isolating. If you want to hangout on video and get to know others within the community, sign up for I AM ALS’ Familial ALS digital social hour. This event takes place on the last Thursday of the month from 7-8 p.m. EST. Like all I AM ALS events, the agenda is…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
RT @Jeanc9orf72: https://t.co/qSDx0t4Upc Reminder for anyone impacted by genetic ALS (or FTD) .. Social hour is today ! You can sign up be…
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Mashup Score: 0Sign Up to Receive our Newly Diagnosed Email Series - I AM ALS - 2 year(s) ago
Being diagnosed with ALS can bring a lot of unknowns, and trying to figure them out can feel overwhelming. Remember: we are here to help. This email series is intended to pace you through the essential information you’ll need. Over the next 8 weeks, you will get 4 emails filled with information and resources to support you through this period of processing the diagnosis and identifying your next…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
This is nice so you don't have to drink from the firehose when newly diagnosed... https://t.co/ra80NKb1Tt
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Mashup Score: 0How to Build Your Care Plan - I AM ALS - 2 year(s) ago
I AM ALS Skip to navigation [n] Skip to content [c] Skip to footer [f] Search Menu I AM ALS Take Action Get Help and Support What is ALS? What is ALS? Latest Research Stories Search Give Twitter Facebook Instagram Search develop my ALS caregiving toolkit Advocating for Your Loved One Share Twitter Facebook Email Learning more about you or…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
Was recently reminded of these handy lists for the newly diagnosed... https://t.co/sspstgETNQ
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Mashup Score: 8Virtual Meet Up for Lou Gehrig Day 2022 - I AM ALS - 2 year(s) ago
Join us for the second annual Lou Gehrig Day. The first was incredible, but this one will be bigger and better with your help! ALS advocates Mandi Bailey, Gary Kurtis, and Luciano Duffy are planning an awesome virtual meet up for folks who can’t make it to a ballpark or other in-person event. It will take place on June 2, 2022 at 6:30 p.m. ET. To sign up to attend, please fill out this…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
Can't get to a ballpark today? Get some peanuts and crackerjack or grill a hot dog and pour a cold beer and join... https://t.co/UZdabS0LSp #LG4Day #LouGehrigDay Be there or be square.
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Mashup Score: 3Worcester, MA Meet Up for Lou Gehrig Day 2022 - I AM ALS - 2 year(s) ago
Take you out to the ballgame? Don’t mind if we do! Join us for the second annual Lou Gehrig Day. The first was incredible, but this one will be bigger and better with your help! So let’s fill the ballpark with ALS advocates and raise awareness! ALS advocates in the Worcester area will have a Lou Gehrig Day meet-up at Polar Park on June 2nd, 2022 for the Woo Sox game against the Syracuse…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
RT @thompsontweach: Wanted to share for those in the NE: https://t.co/b4aixdiGcg
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Mashup Score: 1Join Us for Lou Gehrig Day! - I AM ALS - 2 year(s) ago
Coming to a city near you! Check below for MLB teams and advocates hosting events on June 2nd and 3rd. Sign up to join us or create your own event. Baltimore June 2nd Join ALS advocates celebrating Lou Gehrig Day at the Baltimore Orioles game as they take on the Seattle Mariners at 7:05 p.m. ET Step 1: Click here to sign up to attend! Once you sign up, you’ll hear from…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
RT @RunningMama0522: Have you made plans for #lougehrigday yet? No worries! There’s still time! Go to https://t.co/m8Ovp1ROV9 and find an…
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Mashup Score: 3Virtual Meet Up for Lou Gehrig Day 2022 - I AM ALS - 2 year(s) ago
Join us for the second annual Lou Gehrig Day. The first was incredible, but this one will be bigger and better with your help! ALS advocates Mandi Bailey, Gary Kurtis, and Luciano Duffy are planning an awesome virtual meet up for folks who can’t make it to a ballpark or other in-person event. It will take place on June 2, 2022 at 6:30 p.m. ET. To sign up to attend, please fill out this…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
For those who can't make it to a ballpark on #LG4day ... A virtual option. Rumor is that there will be trivia, so I'm in. Thanks, @RunningMama0522 https://t.co/UZdabS0LSp
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Mashup Score: 0Stories - I AM ALS - 2 year(s) ago
I AM ALS Skip to navigation [n] Skip to content [c] Skip to footer [f] Search Menu I AM ALS Take Action Get Help and Support What is ALS? What is ALS? Latest Research Stories Search Give Twitter Facebook Instagram Search Stories 519 Total stories shared Show me stories by Connection to this movement and Location reset filters View…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
Mother's Day weekend approaches. If your Mom has ALS or died from ALS, pls tell us about her. Lots of stories here - https://t.co/aJg1h7L1vk Or just tell us about her in a tweet w tag #ALSMom #MothersDay Let's fill twitter Sunday! cc @SuzanneMalveaux @nancyodell @KarenAlleyArt
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Mashup Score: 5Show ALS Can Impact Anyone at Any Age - I AM ALS - 2 year(s) ago
You’ve seen us in NY at Times Square, you’ve seen us in Chicago on Magnificent Mile. This May to celebrate ALS Awareness Month we’re planning to show up strong on the National Mall in Washington DC. We want to put YOU at the center — sign up to have your name and age of diagnosis added to one of 6,000 blue flags we’ll be placing on the National Mall. We want to use the front doorstep to the…
Source: I AM ALSCategories: Latest Headlines, Rare DiseaseTweet-
Last chance today -- Have your loved one's name remembered on a flag in the display in the National Mall ... https://t.co/38xCjrn74u
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There are some very helpful "questions to ask" sheets at https://t.co/sspstgETNQ