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Mashup Score: 6AL Amyloidosis: Alison's story - Amyloidosis Research Consortium - 8 month(s) ago
Alison describes her transition from being a nurse to being a patient, her journey to diagnosis, undergoing a bone marrow transplant and …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet
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Mashup Score: 6Disease Overview: Light Chain (AL) Amyloidosis - 9 month(s) ago
Understand the latest information about how Light Chain (AL) amyloidosis might affect you and symptoms to be aware of. This booklet is …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
Understand the latest information about how Light Chain (#AL) #amyloidosis might affect you and symptoms to be aware of. This booklet is a companion booklet to our Treatment Overview: Light Chain (AL) Amyloidosis booklet: https://t.co/hBGLVdcE3w
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Mashup Score: 13The More Things Change, the More They Stay the Same - 9 month(s) ago
Two drugs’ rejections a decade apart have highlighted challenges in drug development in amyloidosis. Tackling these challenges will …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
Two drugs' rejections 10 yrs apart highlighted challenges in drug development in #amyloidosis. Tackling them will require collaboration between drug developers, academic experts, & regulators, and ARC is ideally positioned to facilitate this collaboration. https://t.co/VHxx9KgenD
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Mashup Score: 6Wild-Type ATTR Amyloidosis Overview - 10 month(s) ago
Wild-Type ATTR #amyloidosis (#ATTRwt) is an age-related disease caused by transthyretin (TTR) proteins that become unstable, misfold, and build up in organs, impairing their function. Learn more about the disease and how it might affect you with our informational booklet
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
#HeartDisease is the hallmark of Wild-type transthyretin #amyloidosis (#ATTRwt), but it is commonly preceded by other conditions, such as carpal tunnel syndrome or spinal stenosis. Learn more about this devastating disease: https://t.co/oAPI4jEgu8
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Mashup Score: 5Treatment Overview: Light Chain (AL) Amyloidosis - 10 month(s) ago
Understand the latest information about current types of AL amyloidosis treatments and different options to consider. This booklet is …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
AL #amyloidosis is a serious disease. However, many patients benefit from current therapies, with their lives improved and prolonged, often for many years. Learn more about the current treatment options for the disease: https://t.co/TCoAm3RBKF
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Mashup Score: 5Remembering Dr. Merrill Benson - Amyloidosis Research Consortium - 10 month(s) ago
The Amyloidosis Research Consortium extends our deepest, heartfelt condolences to the family and friends of Dr. Merrill Benson, world renowned amyloidosis expert, who passed away on September 11, 2021.
Source: arci.orgCategories: General Medicine News, CardiologistsTweet-
@MasriAhmadMD Phenomenal dedication to amyloidosis. He was actively recruiting patients till his last days! https://t.co/LVbBZcqLzz
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Mashup Score: 7ARC TALKS: Devices for Heart Improvement - 10 month(s) ago
In this ARC Talks webinar, amyloidosis cardiologist, Dr. Mazen Hanna discusses the function of implantable, electronic devices in cardiac …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
Catch a full recording of our recent #ARCTALKS webinar with Dr. @maz_hanna discussing the function of implantable, electronic devices in #cardiac management of #amyloidosis patients: https://t.co/WHRFzAd8uL
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Mashup Score: 5The Inflation Reduction Act: The Devil is in the Details for Patients with Rare Diseases - 11 month(s) ago
The IRA requires The Centers of Medicare and Medicaid Services (CMS) to negotiate the prices of certain high-cost prescription drugs …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
While trying to lower drug prices is a laudable aim, the Inflation Reduction Act may come at the unintended cost of future innovation. Learn more from ARC's own David Gibson: https://t.co/xR1uQD8w6o
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Mashup Score: 9ARC TALKS Webinar: Devices for Heart Improvement - 11 month(s) ago
In this ARC Talks webinar, amyloidosis cardiologist, Dr. Mazen Hanna will discuss the function of implantable, electronic devices …
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
📅🎥 [February 8] ARC Talks Webinar: Devices for Heart Improvement Amyloidosis cardiologist, Dr. @Maz_Hanna, will discuss the function of implantable, electronic devices in cardiac management of amyloidosis patients. Register Today: https://t.co/eKUM1U53Bb
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Mashup Score: 11Gastrointestinal Involvement in Amyloidosis - 11 month(s) ago
It is common for patients with amyloidosis to experience GI involvement. Explore the various impacts that amyloidosis may have on a patient’s gastrointestinal (GI) tract, the symptoms associated with GI involvement, and potential management techniques.
Source: arci.orgCategories: General Medicine News, Onc News and JournalsTweet-
It is common for patients with amyloidosis to experience GI involvement. Explore the various impacts that #amyloidosis may have on a patient’s gastrointestinal (GI) tract, the symptoms associated with #GI involvement, and potential management techniques: https://t.co/g1JzrqJajv
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Every #amyloidosis patient is different, but at ARC no patient is alone. Meet Alison, an #AL amyloidosis patient, and hear other patients' stories through video testimonials: https://t.co/Gr2TeZ81dW