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Current Opportunities Education and Community Engagement Coordinator (Part Time) Job Summary: The Education and Community Engagement Coordinator is a vital position within the United Porphyrias Asso
Current Opportunities Education and Community Engagement Coordinator (Part Time) Job Summary: The Education and Community Engagement Coordinator is a vital position within the United Porphyrias Asso
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There are a total of 12 candidates in mid to late-stage trials for ALS poised to enter the market in the next five years.
From the original Broadway production of “Camelot” ; together with the song is a slideshow of several photos of the production starring Julie Andrews, Richar…
Tambourine is a private grantmaking foundation founded by Ben Silbermann and his wife Divya Silbermann. Ben Silbermann is a billionaire donor and former technology executive…
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Researchers are using computer and AI technologies to create a Caregiving Robot Assistant (CART) for ALS patients and their caregivers.
An estimated 5.4 million children help care for relatives, as families can’t afford or find other in-home care.
Doris Hansen, MD, discusses the treatment of multiple myeloma using D-Rd and V-Rd in transplant-ineligible patients.