Certain Biotech Investors Get an Early Look at Results. Is That Fair?
Private investments in public equities, or PIPEs, are all the rage in biotech, but some investors resent the sharing of nonpublic information.
Private investments in public equities, or PIPEs, are all the rage in biotech, but some investors resent the sharing of nonpublic information.
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
This year’s conference will celebrate the 25th anniversary of the founding of the KDA. As always, the conference will provide a venue for patients, families,…
Raise awareness & raise funds for spinal CSF leak education and research via the Spinal CSF Leak Foundation! #becauseyourduramaters
AMP ALS, the latest public-private partnership in the FNIH’s growing AMP portfolio, will centralize and build the largest data source for ALS research. This …
The Accelerating Medicines Partnership® (AMP®) Amyotrophic Lateral Sclerosis (AMP ALS) is accelerating therapeutic and biomarker development for familial and sporadic ALS by addressing the challenges…
May 21, 2024 — The National Organization for Rare Disorders (NORD), in partnership with the Tyler James Abizeid Foundation and the MMIHS Foundation, announces
The 32BJ Health Fund sought to exclude NewYork-Presbyterian hospitals from its health network to control spending. But the hospital system wouldn’t walk away without a…
Nature Reviews Neurology – In this Perspective, the authors propose a new classification system for amyotrophic lateral sclerosis and related neurodegenerative disorders that recognizes, in…
Plan ahead. Actively listen. And discuss how to move forward.
Nora Kenworthy has spent years studying the world of crowdfunding for health care — along with the way it ends up amplifying the inequities that…