3q29 Foundation
Find facts and the latest research around 3q29 deletion syndrome and 3q29 duplication syndrome. Learn about these rare genetic conditions, how you can participate in research, and connect with others.
Find facts and the latest research around 3q29 deletion syndrome and 3q29 duplication syndrome. Learn about these rare genetic conditions, how you can participate in research, and connect with others.
Men are the focus of much more health research, leaving unanswered questions about women and cancer, Alzheimer’s and other serious conditions.
In honor of Father’s Day, NORD spoke with volunteer advocate Steve K., father to two-year-old Hannah, about his connection to rare disease through his late
Advocates cited conflicts of interest and lack of diversity on the agency’s advisory panels, and some said patients’ lived experiences were being dismissed.
St. Louis Cardinals President of Baseball Operations John Mozeliak (L) presents St. Louis Cardinals first baseman with the Lou Gehrig Memorial Award before a game…
Simulations can cut down on time-consuming testing typically performed by humans.
Event in Cumming, GA by The Allo Hope Foundation and 2 others on Friday, June 21 2024
The amyotrophic lateral sclerosis (ALS) market is expected to see significant growth in the coming years, but there is still plenty of work to be…
Advocates cited conflicts of interest and lack of diversity on the agency’s advisory panels, and some said patients’ lived experiences were being dismissed.
Multi-day educational meeting covering topics like treatment options, improving quality of life, accessing resources, and much more.