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Mashup Score: 4Protecting Patients in State-Regulated Insurance - National Organization for Rare Disorders - 11 hour(s) ago
Short-Term, Limited-Duration Health Plans
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 2 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 12Rare Disease Day Rare Teen Parents Webinar - 2 day(s) ago
Gain insight and tools to support your rare teen’s mental health while nurturing your own personal well-being.
Source: www.youtube.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2Peter Alexander's sister Rebecca started to lose her sight at 12. It was a sign of a rare disease - 2 day(s) ago
The Saturday TODAY co-anchor’s sister says she’s not trying to overcome Usher syndrome but live with it and through it.
Source: www.today.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 7Rare Impact Awards - NORD's Rare Impact Awards - 2 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet-
Meet one of the Policy Changemakers of this year's #RareImpactAwards, Florida @RepGusBilirakis. As Co-Chairman of the #RareDisease Caucus, Rep. Bilirakis advances the understanding that rare diseases are not a rare problem but a shared problem. Read more: https://t.co/7TzeZVz4zT https://t.co/4r3vN9x3T8
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Mashup Score: 11
WASHINGTON, D.C., May 16, 2024, Today, the House of Representatives’ Energy and Commerce Health Subcommittee voted to advance several bipartisan bills
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2
A local man is thankful for the groundbreaking research happening in a lab at the Stowers Institute in Kansas City, Missouri.
Source: www.kshb.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 3Classical HCU Expression of Interest - HCU Network America - 3 day(s) ago
Learn more about the research grants of HCU Network America by getting in touch with our professional team today.
Source: hcunetworkamerica.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 15
NIH-led findings point to a biomarker for rare disorders associated with the gene PNPLA6.
Source: www.nih.govCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 107Postinduction molecular MRD identifies patients with NPM1 AML who benefit from allogeneic transplant in first remission - 4 day(s) ago
Molecular MRD after induction chemotherapy identifies patients with NPM1 AML who benefit from allogeneic transplant in first remission.Patients achieving M
Source: ashpublications.orgCategories: General Medicine News, Rare DiseaseTweet
Short-term health insurance plans lack adequate benefits and may deny coverage to #RareDisease patients. NORD opposes the inclusion of these plans in state marketplaces, but many states allow them. Does yours? Find out in your 2024 State Report Card: https://t.co/xH2uiZPkFh https://t.co/3IiMj8VqGu