• Mashup Score: 0

    NORD invites you to share your story. Join the individuals and families who have contributed their personal accounts of living with rare diseases. Alone we are rare. Together we are strong! In order to submit a story, please review the story-telling tips and campaign guidelines to see what opportunities we currently have, then proceed with submitting your story by using the form at the bottom of…

    Tweet Tweets with this article
    • Do you have a story about the long road to receiving a #RareDisease diagnosis, (including posthumously) or living as a rare #undiagnosed person? Share your story for the chance to be featured on our blog and social media for #UndiagnosedDay on April 29: https://t.co/aB8IqRMNZB https://t.co/hUzX9cwkMJ

  • Mashup Score: 0

    December 15, 2022 —  Doctors from the Emory Heart & Vascular Center are joining forces with the Family Heart Foundation, a leading research and advocacy organization, to find and more widely treat undiagnosed patients living with a common genetic condition that causes very high levels of unhealthy cholesterol, heightening the risk for heart attacks and strokes even at a young age. The condition,…

    Tweet Tweets with this article
    • @DAICeditor @emoryhealthcare @TheFHFoundation Doctors are joining forces with the Family Heart Foundation to find and more widely treat #undiagnosed patients living with a common #genetic condition that causes very high levels of #unhealthy_cholesterol: https://t.co/MedYGg5o9w

  • Mashup Score: 2

    Undiagnosed Day is to spread awareness and celebrate all living with an Undiagnosed Disease and their loved ones

    Tweet Tweets with this article
    • Today is #UndiagnosedDay2022. Join @WilhelmFound and @UDNIss for a free, international, celebratory webinar to all those living with an #undiagnosed disease at 7:30am EST. Access the webinar: https://t.co/YfcSoGb6oD

  • Mashup Score: 6

    Undiagnosed Day is to spread awareness and celebrate all living with an Undiagnosed Disease and their loved ones

    Tweet Tweets with this article
    • Tomorrow is #UndiagnosedDay. Join @WilhelmFound and @UDNIss for a free, international, celebratory webinar to all those living with an #undiagnosed disease. Learn more: https://t.co/YfcSoGb6oD