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Mashup Score: 0NORD Announces Four Patient Organizations to Join the IAMRARE Community and Submit Data to RDCA-DAP - National Organization for Rare Disorders - 1 year(s) ago
The Rare Disease Cures Accelerator–Data and Analytics Platform (RDCA-DAP®) is an integrated database and analytics hub developed by Critical Path Institute
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0RDCA-DAP - NORD (National Organization for Rare Disorders) - 2 year(s) ago
Accelerating Cures and TreatmentsOver 350 million people in the world have a rare disease, but only about 10% of rare diseases have an FDA-approved treatment. Drug development can be extremely challenging for rare diseases because of the often small patient populations and a limited understanding of how these diseases can manifest and progress. If we can bring together the experience of patients,…
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2Home Page - Rare Disease Cures Accelerator- Data and Analytics Platform Workshop 2022 - 2 year(s) ago
Rare Disease Cures Accelerator- Data and Analytics Platform Workshop 2022. Online registration by Cvent
Source: web.cvent.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Home Page - Rare Disease Cures Accelerator- Data and Analytics Platform Workshop 2022 - 2 year(s) ago
Rare Disease Cures Accelerator- Data and Analytics Platform Workshop 2022. Online registration by Cvent
Source: web.cvent.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 2NORDpod on Apple Podcasts - 2 year(s) ago
Health & Fitness · 2021
Source: Apple PodcastsCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1The Importance of Patient Voices and Data Analytics - NORD (National Organization for Rare Disorders) - 2 year(s) ago
NORD, in partnership with the Critical Path Institute (C-Path) is proud to announce a two-part video series on patient focused drug development (PFDD) as part of our Rare Disease Cures Accelerator-Data and Analytics Platform (RDCA-DAP) initiative.
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 3Patient Focused Drug Development: How RDCA-DAP Can Help - 2 year(s) ago
Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/p1B2QWxam4
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Mashup Score: 2Patient Focused Drug Development: How RDCA-DAP Can Help - 2 year(s) ago
Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/h9JjdhEDou
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Mashup Score: 5Patient Focused Drug Development: How RDCA-DAP Can Help - 2 year(s) ago
Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/Usc5hGyoh8
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Mashup Score: 0Patient Focused Drug Development: How RDCA-DAP Can Help - 2 year(s) ago
Tuesday, November 30,2021; 2:00pm ET Patient-Focused Drug Development (PFDD) is a process that provides patients and caregivers impacted by a rare disease the opportunity to share their experience with those directly involved in the drug development process. The Rare Disease Cures Accelerator, a Data Analysis Platform (RDCA-DAP®), a collaboration between the National Organization for Rare…
Source: TalkpointCategories: Latest Headlines, Rare DiseaseTweet-
New #webinar: "Patient-Focused Drug Development (PFDD): How RDCA-DAP Can Help” on November 30 at 2:00pm ET. Learn how #RDCADAP can strengthen #PFDD efforts to support life-saving & life-changing outcomes. #NORD @CPathInstitute @FDA @KrabbeConnect Register: https://t.co/mYWhnRE1UD https://t.co/pe4zV5p9Nc
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We are pleased to announce four patient advocacy orgs have been awarded the chance to join our IAMRARE Program and implement a natural history study to be included in the #RDCADAP! They are @cure4ars, @FamilieSCN2A, @NationalCMV & @RRPFORG1. Learn more: https://t.co/xLZ3FmUHci https://t.co/RV9QKl87bd