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    Objective Prospective comparative effectiveness research (CER) in chronic nonbacterial osteomyelitis (CNO) is lacking. Our objectives were to (1) determine the use and safety of each consensus treatment plan (CTP) regimen for CNO, (2) assess the feasibility of using the Chronic Nonbacterial Osteomyelitis International Registry (CHOIR) data for CER, and (3) develop and validate a CNO clinical disease activity score (CDAS) using CHOIR. Methods Consenting children or young adults with CNO were enrolled into CHOIR. Demographic, clinical, and imaging data were prospectively collected. The CNO CDAS was developed through a Delphi survey and nominal group technique. External validation surveys were administered to CHOIR participants. Results One hundred forty (78.2%) CHOIR participants enrolled between August 2018 and September 2020 received at least 1 CTP regimen. Baseline characteristics from different CTP groups were well matched. Patient pain, patient global assessment, and clinical CNO le

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    • Research Article Feasibility of Conducting Comparative Effectiveness Research and Validation of a Clinical Disease Activity Score for Chronic Nonbacterial Osteomyelitis 📰 https://t.co/3MODb9V37X #chronicnonbacterialosteomyelitis #pediatric https://t.co/XGyjyOEGCk

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    Objectives This longitudinal cohort study aimed to identify trajectories of parent well-being over the first two years after their child’s evaluation for candidacy for epilepsy surgery, and to ident…

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    • Key point: Multigroup latent class growth models identified three trajectories of parent well-being https://t.co/1YrmcusRpA #anxietysymptoms, #depressivesymptoms #familyresources #pediatric #epilepsysurgery #DrugResistant #Epilepsy @IlaeWeb @epilepsiajourn @WileyNeuro https://t.co/y5ebJFmjd5

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    NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.

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    • More #NORDSummit sessions happening next week - on #pediatric treatment development and promising new technologies for #RareDiseases. It's not too late to join us in Washington, DC or virtually on October 16-17! Register now: https://t.co/atVC9JhurQ https://t.co/8FyTbtynlM

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    Characteristics of 26,565 patient encounters from January 2019 to December 2020 were analyzed. U.S. Census Bureau geographic identifiers were assigned to each participant and aligned with the American Community Survey (2015–2019) socioeconomic and digital outcomes. Reported odds ratios (OR) are telehealth encounter/in-person encounter. Results: GI telehealth usage increased 145-fold in 2020 compared to 2019 for NCH-DV. Comparing telehealth to in-person usage in 2020 revealed that GI patients who required a language translator were 2.2-fold less likely to choose telehealth [individual level adjusted OR (I-ORa) [95% confidence interval, CI], 0.45 [0.30–0.66], P < 0.001]. Individuals of Hispanic ethnicity or non-Hispanic Black or African American race are 1.3–1.4-fold less likely to utilize telehealth than non-Hispanic Whites (I-ORa [95% CI], 0.73 [0.59–0.89], P = 0.002 and 0.76 [0.60–0.95], P = 0.02, respectively). Households in census block groups (BG) that are more likely to utilize te

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    • Mougey et al examined telehealth and ambulatory visits in #pediatric GI care to identify demographic, socioeconomic and digital disparities finding multiple sources of inequity. #CME #openaccess @dr_rdvenkatesh @johnmrosen @JenniferLeeLee1 https://t.co/PM0AotehNT https://t.co/i0qMRAgXh0

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    trospective study was to identify risks for adverse events, procedure failure, and prolonged courses in pediatric patients undergoing ERCP. Methods: Pediatric patients who had an ERCP at one of our academic centers were identified by query of their electronic medical records. Pre-procedure and post-procedure data were collected with ERCP-related adverse events defined according to the consensus criteria developed by Cotton et al 2010. Results: Between January 2004 and January 2021, 287 children had a total of 716 ERCPs. The procedure success rate was 95.5% with no mortality and an adverse event rate of 12.7%. Younger age was associated with increased case complexity, increased adverse events, and an increased rate of repeat ERCP. Case complexity score correlated with increased procedure time (P < 0.001) and increased adverse events (tau 0.24, P < 0.01); stent removal and pancreatic stenting were more likely to precede an adverse event. Pancreatitis, pancreatic divisum, and pancreatic s

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    • .@lorio_md et al reviewed #pediatric #ERCP data to determine risk factors for adverse outcomes: 👉 Procedure-related mortality rare 👉 Adverse event rates higher than in adults 👉 Young age associated with adverse events https://t.co/vH8hj7CVhO https://t.co/1sldJXxhzi

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    The authors have no disclosures related to this video. For more information, please click the disclosures. 19:09 4 Views Published July 07, 2023 …

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    • Today on #OVT watch as Mara Karamitopoulos, MD, of #NYU discusses #pediatric #xray assessment, addressing #orthopedic #trauma and #fractures topics. @DrMaraK @nyulangoneortho #OVTFridays #education #orthotwitter https://t.co/kQeEzxgFRA https://t.co/hL2B5KqPs3