• Mashup Score: 0

    Background and Objectives No effective cure is available for neurogenetic diseases such as Huntington disease, spinocerebellar ataxias, and Friedreich ataxia, all of which cause progressive motor, cognitive, and psychiatric symptoms leading, in the long term, to severe communication (among other) impairments. In end-of-life situations, advanced directives (indications formulated by the patient about end-of-life choices) are one decision-making resource for relatives, caregivers, and health care professionals. Given the slowly progressive nature of these diseases, the related disabilities, and their hereditary component, patients, caregivers, and neurologists are often at a loss concerning the right course of action to take. Our study’s aim was to explore patients’ and caregivers’ perceptions, needs, and expectations around anticipated end-of-life discussions and advanced directives. Methods DIRAGENE is an observational, cross-sectional, mixed-methods study with a patient-centered compo

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    • Via @GreenJournal: Including conversations about end-of-life-planning into their health care will benefit patients whose neurologic diseases have unfavorable long-term prognoses: https://t.co/agQ5LPUEdl #NeuroTwitter @AANMember #PalliativeCare #hospice #EndOfLifeCare https://t.co/o1wLUxx6F1

  • Mashup Score: 2

    Purpose: Hospitalized patients with advanced cancer have a high symptom burden and need for support. Integration of palliative care (PC) improves symptom control and decreases unwanted health care use, yet many patients are never offered these services. In 2016, ASCO called for incorporation of PC into oncologic care for all patients with metastatic cancer. To improve the quality of cancer care, we developed standardized criteria, or triggers, for PC consultation on the inpatient solid tumor service. Methods: Patients were eligible for this prospective cohort study if they met at least one of the following eligibility criteria: had an advanced solid tumor; prior hospitalization within 30 days; hospitalization > 7 days; and active symptoms. During the intervention, patients who met the criteria received automatic PC consultation. Results: When we compared patients in the intervention group with control subjects, there were increases in PC consultations (19 of 48 [39%] to 52 of 65 [80%];

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    • Standardized Criteria for #PalliativeCare Consultation on a Solid Tumor Oncology Service Reduces Downstream Health Care Use ⁦@JCO_ASCO⁩ ⁦@realbowtiedoc⁩ ⁦@crisbergerot⁩ ⁦@ramsedhom⁩ https://t.co/MBJgKYGgwv