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Mashup Score: 7Recapping NORD 2023 Breakthrough Summit - Patient Worthy - 3 month(s) ago
After attending the NORD Breakthrough Summit in October, I wanted to share the best rare disease insights from the event.
Source: patientworthy.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 62023 NORD Breakthrough Summit: "I Am Enough" by Casey McPherson - 4 month(s) ago
As part of the Patient/Caregiver Keynote at the 2023 NORD Rare Diseases & Orphan Products Breakthrough Summit, rare dad and founder of To Cure A Rose Foundat…
Source: www.youtube.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 7National Organization for Rare Disorders | NORD - 5 month(s) ago
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases
Source: rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0Neuromuscular Doctor | Denton & Dallas - Fort Worth area, TX | Neurology & Neuromuscular Care Center - 5 month(s) ago
To learn more about our research, call Neurology & Neuromuscular Care Center in Denton, TX, at (972) 634-2931. Dr. Diana Castro, MD
Source: www.neuromdcenter.comCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 4Four actions for faster rare disease diagnosis and improved health equity - a Takeda & NORD report - National Organization for Rare Disorders - 5 month(s) ago
Today, Takeda and the National Organization for Rare Disorders (NORD) released a new report that calls for changes to shorten time to diagnosis and improve
Source: rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1NORD® Learning – Empowering through education - 5 month(s) ago
Skip to content About NORD NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 330 patient organization…
Source: learn.rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 6NORD Launches Education Series to Advance Patient Involvement in Rare Disease Drug Development - National Organization for Rare Disorders - 5 month(s) ago
Today, the National Organization for Rare Disorders (NORD) launched a new education series in English and Spanish titled, “Rare Disease Drug Development: What
Source: rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet-
NEW: At today's #NORDSummit, we're proud to announce a new education series in partnership with @US_FDA and @CPathInstitute designed to help patients and advocates understand their role as drivers of the #RareDisease drug development process. Learn more: https://t.co/8j3qHGJSd7 https://t.co/DDRTcvubIz
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Mashup Score: 4Student Awareness & Fundraising - 5 month(s) ago
Creating rare disease fundraising ideas and awareness for student organizations
Source: rarediseases.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0NORD Breakthrough Summit | Rare Disease Conference - 6 month(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: nordsummit.orgCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0NORD Breakthrough Summit | Rare Disease Conference - 6 month(s) ago
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Source: nordsummit.orgCategories: Latest Headlines, Rare DiseaseTweet
It's been two months since our NORD Breakthrough Summit in DC, but we're still reflecting on everything we learned and everyone we met! Read this wonderful recap from @PatientWorthy of the event's standout moments: https://t.co/EhZ0VWWzRt #NORDSummit