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Mashup Score: 0Service Dog at NORD’s Living Rare Forum in Washington D.C. - 11 month(s) ago
Sebastian and Kaitlyn had the honors of attending the National Organization for Rare Diseases’ Living Rare Forum in Washington D.C.Sebastian really stole the…
Source: YouTubeCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 4NORD 40th - National Organization for Rare Disorders - 11 month(s) ago
40 Years of Impact, Driven by Patients In the late 1970s, Abbey S. Meyers was a working mom from Connecticut on a mission to find treatments for her son with Tourette’s syndrome. She assumed she wasn’t the only parent waging such a battle for their child, and she was right. She ended up becoming the mother of a movement. Abbey formed the coalition of patient advocates who championed the enactment…
Categories: Latest Headlines, Rare DiseaseTweet-
At last week's #LivingRareForum, we learned, laughed, danced, celebrated 40 years of NORD and connected with so many in the #RareDisease community See highlights feat. the NORD Zebra, laughter yoga, and a few stunning panelists! More on NORD's 40th here: https://t.co/i5RGiVIRTN https://t.co/jp0CKYPiqK
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Mashup Score: 3Newborn Screening - National Organization for Rare Disorders - 11 month(s) ago
Screening for RUSP Conditions
Categories: Latest Headlines, Rare DiseaseTweet-
@ncats_nih_gov @US_FDA @DukeHealth Also being discussed: How we're shortening the time to diagnosis, and diagnosing #RareDiseases earlier with expanded #NewbornScreening. Consult NORD's State Report Card here to see how your state measures up on newborn screening: https://t.co/5lPKuPRebi #LivingRareForum
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Mashup Score: 0Living Rare Living Stronger - Rare Disease Patient Event - 11 month(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun!
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1Living Rare Living Stronger - Rare Disease Patient Event - 11 month(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun!
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
Are you unable to make it to Washington, DC on Saturday but still want to attend the #LivingRareForum? Register today to attend virtually and join us for a day of learning, networking, and fun! Free for #RareDisease patients and families. Register here: https://t.co/Gm8VZ19GNS https://t.co/csxBleGPel
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Mashup Score: 0Living Rare Living Stronger - Rare Disease Patient Event - 11 month(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun!
Source: Living Rare Living StrongerCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 0Rare Impact Awards - NORD's Rare Impact Awards - 11 month(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: NORD's Rare Impact AwardsCategories: Latest Headlines, Rare DiseaseTweet-
The 2023 #LivingRareForum is 1 week away! If you live in the DMV, come join us in person! Otherwise, this event can be attended virtually from home. Connect with other members of the #RareDisease community to share stories, knowledge and joy. Register now: https://t.co/5toKlR24K7 https://t.co/Wnguk0FU6o
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Mashup Score: 1Agenda - Living Rare Living Stronger - 11 month(s) ago
Check out the Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards agenda.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
Need a reason to feel hopeful? Join us for "Rare Breakthroughs: Now & On the Horizon" featuring Drs. PJ Brooks of @ncats_nih_gov, Jennifer Cohen of @DukeHealth & Peter Marks of @US_FDA. Our #LivingRareForum is Sat. May 6! See the agenda & register here: https://t.co/5Oo1rU1cks https://t.co/vwFevhn1a3
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Mashup Score: 0Agenda - Living Rare Living Stronger - 12 month(s) ago
Check out the Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards agenda.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1Hotel & Pricing - Living Rare Living Stronger - 12 month(s) ago
The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
Source: Living Rare Living StrongerCategories: Latest Headlines, Rare DiseaseTweet-
Last chance to book your stay for the #LivingRareForum at our discounted rate! Register for this free patient & family event in DC, then book your hotel room with us so you can connect with others in the #RareDisease community before and after the event: https://t.co/JwHL7fM471 https://t.co/YszAdk1Cdi
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Can you believe our #LivingRareForum was one week ago? We were thrilled to welcome 300+ attendees in person in DC, including Sebastian the Service Dog & his owner, Kaitlyn! 🐕🦺 Watch the event through the eyes of a service dog: https://t.co/Dv6TFJY36S