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Mashup Score: 0End-of-Life Discussions With Patients and Caregivers Affected By Neurogenetic Diseases - 5 month(s) ago
Background and Objectives No effective cure is available for neurogenetic diseases such as Huntington disease, spinocerebellar ataxias, and Friedreich ataxia, all of which cause progressive motor, cognitive, and psychiatric symptoms leading, in the long term, to severe communication (among other) impairments. In end-of-life situations, advanced directives (indications formulated by the patient about end-of-life choices) are one decision-making resource for relatives, caregivers, and health care professionals. Given the slowly progressive nature of these diseases, the related disabilities, and their hereditary component, patients, caregivers, and neurologists are often at a loss concerning the right course of action to take. Our study’s aim was to explore patients’ and caregivers’ perceptions, needs, and expectations around anticipated end-of-life discussions and advanced directives. Methods DIRAGENE is an observational, cross-sectional, mixed-methods study with a patient-centered compo
Source: cp.neurology.orgCategories: Latest Headlines, NeurologyTweet
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Mashup Score: 1
Policy makers in the US are increasingly concerned that greater use of the Medicare hospice benefit by people with dementia is driving up costs. Yet this perspective fails to incorporate potential cost savings associated with hospice. We estimated the association between hospice use by people with dementia and health care costs, using Medicare Current Beneficiary Survey data from the period 2002–19. For community-dwelling people with dementia, Medicare costs were lower for those who used hospice than for those who did not, whether hospice enrollment was in the last three days ($2,200) or last three months ($7,200) of life, primarily through lower inpatient care costs in the last days of life. In nursing homes, total and Medicare costs were lower for hospice users with dementia who enrolled within a month of death than for those who did not use hospice. Total costs for the entire last year of life for those who used any days of hospice in the last year compared with no hospice did not d
Source: www.healthaffairs.orgCategories: General Medicine Journals and Societies, Latest HeadlinesTweet
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Mashup Score: 0
Hospices acquired by private equity firms and publicly traded companies shift their operational strategies toward maximizing profits, the new study in JAMA Network Open suggests.
Source: www.healthcaredive.comCategories: Healthcare Professionals, Latest HeadlinesTweet
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Mashup Score: 0Death education: the importance of terror management theory and of the active methods - 7 month(s) ago
Commentary on: Wu Q, Zhu P, Ji Q, et al . The effect of death education course utilizing constructivist learning theory on first grade undergraduate nursing student attitudes and coping abilities towards death: A mixed study design. Nurse Educ Today . 2023 Jul;126:105809. doi: 10.1016/j.nedt.2023.105809. Epub 2023 Apr 6.
Source: ebn.bmj.comCategories: Latest Headlines, NursingTweet
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Mashup Score: 0Access to High-Quality Hospice Care in a For-Profit World - 7 month(s) ago
Evidence supporting the relief of suffering and improved end-of-life care provided by hospice is in contrast with recent media reports of cases of poor-quality
Source: academic.oup.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 0Palliative and Hospice Care for AML Patients - HealthTree for AML - 8 month(s) ago
The content provided in this page is to help address the often difficult topics of hospice and palliative care. Content contributions were made by Steve Hodges.
Source: healthtree.orgCategories: Hem/Oncs, Latest HeadlinesTweet
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Mashup Score: 0CMS Finalizes 3.1% Hospice Payment Update for 2024, But Industry Stakeholders Fear It Falls Short - 8 month(s) ago
The U.S. Centers for Medicare & Medicaid Services (CMS) is giving hospices a 3.1% increase to their per diem payments for 2024, according to a final
Source: hospicenews.comCategories: Healthcare Professionals, Latest HeadlinesTweet
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Mashup Score: 0What Is Respite Care? - 9 month(s) ago
When caring for a loved one around the clock, it can be easy to get burned out–which is where respite care comes in.
Source: www.henryford.comCategories: General Medicine News, Latest HeadlinesTweet
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Mashup Score: 2A Culture of Rescue: How Avoiding Distress in Prognostic Communication Shapes Caregiver Expectations | Cancer Nursing Today - 9 month(s) ago
Patients and caregivers hold optimistic expectations until late stages, highlighting the need for ongoing conversations.
Source: Cancer Nursing TodayCategories: Latest Headlines, Partners & KOLsTweet
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Mashup Score: 2Journal of Palliative Medicine | Vol 26, No 6 - 10 month(s) ago
Journal of Palliative Medicine
Source: Journal of Palliative MedicineCategories: Latest Headlines, Palliative MedicineTweet
Via @GreenJournal: Including conversations about end-of-life-planning into their health care will benefit patients whose neurologic diseases have unfavorable long-term prognoses: https://t.co/agQ5LPUEdl #NeuroTwitter @AANMember #PalliativeCare #hospice #EndOfLifeCare https://t.co/o1wLUxx6F1