ectodermaldysplasia – MashupMD

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Join Us for Advocacy Day on the Hill - NFED - 11 month(s) ago

Join the NFED and their efforts to advocate for the Ensuring Lasting Smiles Act during their Advocacy Day on Capitol Hill.

Source: National Foundation for Ectodermal Dysplasias

Categories: Latest Headlines, Rare Disease

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- RareDiseases
  
  .@NFED_ORG is hosting an Advocacy Day for the #EnsuringLastingSmiles Act (ELSA). Please join them September 18-19, to meet with legislators about the importance of #ELSA for those affected by #CongenitalAnomalies. Register here: https://t.co/JiOYWOGBeq #EctodermalDysplasia

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Lessons from One Arm Dove Hunt - 4 year(s) ago

Artist, Jacob Moss’s documentary photography project, One Arm Dove Hunt, explores the experiences of individuals with ectodermal dysplasia, a condition he also has. Lessons from One Arm Dove Hunt exa…

Source: Wiley Online Library

Categories: Dermatology, Latest Headlines

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- DermatologyNews
  
  Let us think a little broader: Lessons from One Arm Dove Hunt by Jacob Moss in Pediatric Dermatology https://t.co/tG6utyB4gh #pediatrics #dermtwitter #ectodermaldysplasia