Patient Empowerment Network | Empowerment For Patients
Knowledge is your superpower! Free, patient-focused, easy to understand resources and videos for cancer patients and their loved ones.
Knowledge is your superpower! Free, patient-focused, easy to understand resources and videos for cancer patients and their loved ones.
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
A foundation to support research to help people with a neurodevelopmental condition
KDM5C Kares: Improving the lives of kids and families affected by KDM5C.
Darlene Shelton, President & Founder of Danny’s Dose Alliance, kicks off with an 8-minute introduction about Danny’s Dose, their mission, achievements, and l…
Since our inception in 1983, NORD has maintained the highest level of transparency in how we are structured and how we represent the rare disease…
NORD’s State Report Card grades states on policies that benefit or jeopardize health care coverage, access, and affordability for people living with rare
The 2024 Rare Impact Awards will honor those individuals and organizations doing remarkable work on behalf of the rare disease community. The awards ceremony will…
An accessible, medically-safe, family camp for children diagnosed with ADEM, AFM, MOGAD, NMOSD, ON, and TM, and their family members. The camp provides a chance…
The Rare Disease Summit delivers solution-focused strategies for patient access, reimbursement, commercialization, launch, partnering and more. This Rare Disease Conference is the industry’s choice for…
NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases