The Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards will be a truly patient-centric event. Through it all, we will maintain our objectives: networking, education, inspiration, hope and fun! In 2021, the Rare Impact Awards will return as part of the program and all attendees and their guests are invited to participate.
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists.
Trends in Out-of-Pocket Spending and Laws
Learn about Marshall-Smith Syndrome and find valuable information through our nonprofit organization dedicated to raising awareness and supporting individuals with this rare condition.
The Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction…
Meet NORD’s Running for Rare team, the dedicated runners participating in our upcoming flagship events. Click “Learn More” to dive into each runner’s full profile…
Meet NORD’s Running for Rare team, the dedicated runners participating in our upcoming flagship events. Click “Learn More” to dive into each runner’s full profile…
Current Opportunities Education and Community Engagement Coordinator (Part Time) Job Summary: The Education and Community Engagement Coordinator is a vital position within the…
