Mashup Score:5
I AM ALSRequest a Panel of People Impacted by ALS – I AM ALS - 2 weeks
Mashup Score:5
Articles from: I AM ALS
Mashup Score:2
I AM ALSPatient-Centric Trial Design (PaCTD) Rating Criteria – I AM ALS - 2 weeks
Mashup Score:2
The PaCTD rating system was created by a group of patient and caregiver volunteers on the I AM ALS Clinical Trials Team. Their goal...
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This rating system is huge. It is a system that should be used and understood throughout ALS Land. It sets the rules for ALS trials that people living with ALS expect and deserve. We should talk about it with sponsors every chance we get. https://t.co/qYXGnICDCI. - view on twitter
Mashup Score:3
I AM ALSIn Memoriam Video – I AM ALS - 2 months
Mashup Score:3
In 2022, we lost a lot of incredible people to ALS, and it’s been really hard. Our hearts are broken. As we move forward...
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2022 has been an absolutely brutal year of loss of loved people to ALS. If you have lost someone, you may have her or him included in this tribute -- https://t.co/x0nmnGeXSH - view on twitter
Mashup Score:14
I AM ALSHow to Build Your Care Plan – I AM ALS - 3 months
Mashup Score:14
ALS and Activities of Daily Living This guide from the Les Turner ALS Foundation provides helpful information on tips for maintaining energy, sleeping, equipment...
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There are some very helpful "questions to ask" sheets at https://t.co/sspstgETNQ - view on twitter
The experience of losing multiple family members to ALS while understanding that you might also develop the disease can be overwhelming and isolating. If...
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RT @Jeanc9orf72: https://t.co/qSDx0t4Upc Reminder for anyone impacted by genetic ALS (or FTD) .. Social hour is today ! You can sign up be… - view on twitter
Mashup Score:9
I AM ALSSign Up to Receive our Newly Diagnosed Email Series – I AM ALS - 6 months
Mashup Score:9
Being diagnosed with ALS can bring a lot of unknowns, and trying to figure them out can feel overwhelming. Remember: we are here to...
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This is nice so you don't have to drink from the firehose when newly diagnosed... https://t.co/ra80NKb1Tt - view on twitter
Mashup Score:14
I AM ALSHow to Build Your Care Plan – I AM ALS - 8 months
Mashup Score:14
I AM ALS Skip to navigation [n] Skip to content [c] Skip to footer [f] Search Menu I AM ALS Take Action Get Help...
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Was recently reminded of these handy lists for the newly diagnosed... https://t.co/sspstgETNQ - view on twitter
Mashup Score:2
I AM ALSVirtual Meet Up for Lou Gehrig Day 2022 – I AM ALS - 8 months
Mashup Score:2
Join us for the second annual Lou Gehrig Day. The first was incredible, but this one will be bigger and better with your help! ...
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Can't get to a ballpark today? Get some peanuts and crackerjack or grill a hot dog and pour a cold beer and join... https://t.co/UZdabS0LSp #LG4Day #LouGehrigDay Be there or be square. - view on twitter
Take you out to the ballgame? Don’t mind if we do! Join us for the second annual Lou Gehrig Day. The first was incredible,...
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RT @thompsontweach: Wanted to share for those in the NE: https://t.co/b4aixdiGcg - view on twitter
Join Us for Lou Gehrig Day! – I AM ALS - 8 months
Coming to a city near you! Check below for MLB teams and advocates hosting events on June 2nd and 3rd. Sign up to join...
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RT @RunningMama0522: Have you made plans for #lougehrigday yet? No worries! There’s still time! Go to https://t.co/m8Ovp1ROV9 and find an… - view on twitter
More coverage:
#lougehrigday
There are some things you can’t learn from a lecture or textbook. You need to hear it from those living in the reality of...
Yesterday I got to participate in a @gatortimbo panel of PLWALS & caregivers who spoke w some HS students (including a hockey team). These panels are a unique & valuable opportunity for people to learn about ALS & have their questions answered. https://t.co/B2M6r7tJyZ - view on twitter