When: February 4, 2021 @ 11:00 am – February 5, 2021 @ 2:00 pm Where: Virtual Event Join us for the 2021 CurePSP International Research Symposium featuring leaders from academia and industry in clinical and preclinical science relevant to PSP, CBD, and tauopathies! CurePSP conducts an International Research Symposium that brings together … Read More
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
To preview an abridged version of the conference program, please see a link to the program in the “Quick Links” sidebar to the left. Save…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Platelet Disorder Support Association – Empowering ITP Patients. Comprehensive information and support for those concerned about ITP, immune thrombocytopenia.
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists.
Trends in Out-of-Pocket Spending and Laws
Learn about Marshall-Smith Syndrome and find valuable information through our nonprofit organization dedicated to raising awareness and supporting individuals with this rare condition.
