Rare Disease Innovation and Data Sharing Accelerated by New RDCA-DAP Program – NORD (National Organization for Rare Disorders)
New platform launches to share rare diseases data and to support treatment innovation
New platform launches to share rare diseases data and to support treatment innovation
Platelet Disorder Support Association – Empowering ITP Patients. Comprehensive information and support for those concerned about ITP, immune thrombocytopenia.
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists.
Trends in Out-of-Pocket Spending and Laws
Learn about Marshall-Smith Syndrome and find valuable information through our nonprofit organization dedicated to raising awareness and supporting individuals with this rare condition.
The Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction…
Meet NORD’s Running for Rare team, the dedicated runners participating in our upcoming flagship events. Click “Learn More” to dive into each runner’s full profile…