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New platform launches to share rare diseases data and to support treatment

  • NEWS: Rare Disease Innovation and Data Sharing Accelerated by New #RDCADAP Program. “Patient owned #data collected by patient groups are less likely to get stuck in a silo,” said Ed Neilan, MD, PhD, Chief Medical and Scientific Officer, NORD. Read on: https://t.co/Fgb2j2bKpk - view on twitter