NORD Breakthrough Summit 2021
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
NORD Summit is one of the largest events in rare disease, bringing together participants spanning the rare community.
Before becoming a NORD Running for Rare coach, I was a runner for over 30 years chasing my own goals, and a coach for 10 years…
Each year, UMDF’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and the patients we serve. With over 700 attendees representing almost…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
To preview an abridged version of the conference program, please see a link to the program in the “Quick Links” sidebar to the left. Save…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Platelet Disorder Support Association – Empowering ITP Patients. Comprehensive information and support for those concerned about ITP, immune thrombocytopenia.
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists.