Home Page – The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
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Home Page – The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
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The Metaplastic Breast Cancer Global Alliance, Inc. is a nonprofit organization founded and administered by volunteers and supported by noted researchers and oncologists.
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The Marshall-Smith Syndrome Association of the United States
Learn about Marshall-Smith Syndrome and find valuable information through our nonprofit organization dedicated to raising awareness and supporting individuals with this rare condition.
House Committee on Energy and Commerce
The Committee on Energy and Commerce is the oldest standing legislative committee in the U.S. House of Representatives and is vested with the broadest jurisdiction…
Runners – Running for Rare
Meet NORD’s Running for Rare team, the dedicated runners participating in our upcoming flagship events. Click “Learn More” to dive into each runner’s full profile…
Runners – Running for Rare
Meet NORD’s Running for Rare team, the dedicated runners participating in our upcoming flagship events. Click “Learn More” to dive into each runner’s full profile…
Join Our Team
Current Opportunities Education and Community Engagement Coordinator (Part Time) Job Summary: The Education and Community Engagement Coordinator is a vital position within the…