One of the best ways to connect with other families and people with Williams syndrome, who can provide lifelong friendship and support, is to attend an event. The WSA, with the help of volunteers across the country, hosts a wide variety of events, including educational events, family picnics, walks, fundraising events, and more.
The Living Rare, Living Stronger NORD Patient and Family Forum will be a truly patient first event. Through it all, we will maintain our objectives:…
Before becoming a NORD Running for Rare coach, I was a runner for over 30 years chasing my own goals, and a coach for 10 years…
Each year, UMDF’s Mitochondrial Medicine Conference brings together the best minds in mitochondrial medicine and the patients we serve. With over 700 attendees representing almost…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
To preview an abridged version of the conference program, please see a link to the program in the “Quick Links” sidebar to the left. Save…
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease…
Platelet Disorder Support Association – Empowering ITP Patients. Comprehensive information and support for those concerned about ITP, immune thrombocytopenia.
The only event where research leaders convene to share their experiences, accomplishments, best practices and resulting impacts on the science of patient engagement with a…
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
