Background and Objectives The COVID-19 pandemic has dramatically increased telehealth use. We assessed access to and use of telehealth care, including videoconferencing and usability of videoconferencing, among persons with multiple sclerosis (MS). Methods In Fall 2020, we surveyed participants in the North American Research Committee on Multiple Sclerosis Registry. Participants reported…
Background and ObjectiveSpontaneous intracranial hypotension (SIH) from CSF leak commonly produces headache. It also may produce sagging brain syndrome (SBS), often with neurocognitive symptoms indistinguishable…
BackgroundImmune-mediated peripheral nervous system (PNS) disorders pose diagnostic and therapeutic challenges, necessitating collaborative, patient-centered care. Limited access to specialized centers leads to delayed diagnosis and…
Background and ObjectivesDementia with Lewy bodies (DLB) is a common degenerative dementia, but research on caregiver experiences in late stages is lacking. This study aimed…
Background and ObjectivesOccupational therapy (OT) consensus recommendations and articles outlining a sensory-based OT intervention for functional neurological disorder (FND) have been published. However, limited research…
BackgroundAnti-CD20 therapies have proven to be highly effective and safe therapies for multiple sclerosis (MS) and have had rapid uptake in the MS community. However,…
Background and ObjectivesVisual auras in migraine have been extensively studied, but less is known about unusual experiences in other sensory domains, including whether they should…
Background and ObjectivesResearch suggests a potential role for cannabinoids in the etiology and treatment of migraine. However, there is a paucity of research on usage…
Background and ObjectivesSpinal muscular atrophy (SMA) is a neurodegenerative disorder manifesting with progressive muscle weakness and atrophy. SMA type 1 used to be fatal within…
Background and ObjectivesDemand for specialty neurologic care has been steadily increasing over the past several decades, and health systems are needing to meet the demands…
BackgroundSeizure action plans (SAPs) provide valuable information for patients to manage seizure emergencies, but are underutilized in adult epilepsy centers. The purpose of this project…
